We were all home last week due to sickness and it hit us all a little differently. On the bright side, we were all home together for my birthday. We were sick, but still together. Judah was doing virtual appointments for OT and PT this week and other exercises/activities with us in between. We had experienced the odd virtual physio therapy appointment before his surgery and he is very familiar with doing exercises at home. Judah is now back at the gymie-school this week. 

For a handful of mornings a few weeks ago, Judah was singing his own made up song on the way to school or therapy: “It’s a new day. It’s new day. I’m so excited for a new day.” This was an important reminder for me to pause and reflect on. We all have ebbs and flows to our days, and moments we enjoy more than others. However, regardless of what happened one day, for better or worse, there is always a new day ahead of us that is full of potential and hope if we look for it.

Judah’s incision has been healing very well. He was approved to go swimming three weeks ago and he loves his time in the pool! He was waiting patiently for this time since the beginning of our gymie-school experience! He is doing so well in the pool and I look forward to seeing how this supports his therapy goals. He will go swimming for physio therapy once a week and there will also be one recreational swim time for him once a week. Judah is having fun during his school time as well. He is enjoying connecting with his teachers and other kids in his classroom,  which we are grateful for. Judah has been working hard during his physio and occupational therapy time and trying his best. As a five year old, he sometimes wants to do this own things and explore the space on his own. He is walking to his therapies and to school using his walker instead of using the wheelchair.

I was able to request a play mat for Judah to use in our room. This has been a game changer for him to enjoy playing in different positions during his downtime just like he would at home and also it is a productive time get some energy out. Because Judah’s roommate “went home forever”, as Judah calls it, we were able to move to their side of the room which is bigger and allows for the play mat space. We are grateful for the huge window we have on this side too. 

Praise God for:

-Everyone in our home is healthy again 

-Swimming program to support Judah’s rehabilitation 

-Judah’s participation in virtual therapies last week 

-Judah having a buddy close to his age to play with

Prayer Points:

-Judah‘s continued understanding, motivation and confidence to try new exercises and activities for physio and occupational therapy 

-Strengthening of his muscles for proper coordination, endurance and balance 

-Our family’s continued health to keep Judah going to Holland Bloorview during the week 

-Perseverance as we continue on this journey